This week, including the past weekend, was one of those picture perfect, wonderful, boring, fabulous weeks! After spending so much time in the hospital, all I wished for was this kind of week. We spent the holiday weekend with family & friends- BBQ'ing, swimming, playing games, etc. This week Grace and I made time to get out of the house- wandering around Target, Barnes & Noble, and Bed, Bath & Beyond. I figured we would get it out of our system before RSV season rolls in. I've been working on a cake this week for a 16th birthday- an old Hollywood glamour themed cake- too cute! Felix has just been working, and working, and working, and working.... Poor guy! He is completely swamped in claims! His birthday is coming up just around the corner and Grace and I bought him an early present- Rock Band Beatles. I think we'll also be getting him his very own Kindle soon, so he stops stealing mine! :)
I follow lots of heart blogs, and of course, friends and family's too. I was moved to tears of joy yesterday reading that Paul Cardall received his heart! Thank God! Please pray for his family. He had been waiting over a year for this precious gift.
I've been in spring cleaning mode, or something. Yesterday I tore apart our kitchen and re-organized EVERYTHING! I think my husband was a bit nuts over it, but the end result is fab. Family coming into town always finds me neurotic like this. :)
Grace is well, no new news- which is a great thing! Today we meet with CT surgery. Not sure what we're hoping to accomplish, but maybe we'll get off of Vivonex? I'm ready for her to be back on her old formula again. We'll meet with the Early Intervention Program and DDD soon- pray that Grace qualifies so that we can get services in our home. It's very difficult living in the West Valley, as all of the qualified providers are in the Central or East Valley. Having someone come to our home is a prayer come true!
That's all I have to report. Ta Ta for now!
Posts
Good luck with the early intervention stuff.. remember... if she doesn't do it 100% of the time.. say 'NO.. she does not do it at all!" Don't make her look like a rockstar, which is hard, cause she totally is!!! We qualified for AZEIP right from the start, DDD is more complex. AZEIP should still offer you Physical Therapy in home at the very least. You can ask for Occupational Therapy to help with feeding as well. GOOD LUCK!!!!!
ReplyDeleteI hope she gets rid of the Vivonex soon!
Too bad you don't live in Michigan...I would be hiring you for a minnie mouse cake for Madi's first b-day! I would love to see pics of the cakes you make...make a post about it!!! I'm glad you had a great boring week!
ReplyDelete