tag:blogger.com,1999:blog-905889553400399981.comments2023-08-21T07:20:10.049-07:00Marchese FamilyAnonymoushttp://www.blogger.com/profile/11384290390804099018noreply@blogger.comBlogger85125tag:blogger.com,1999:blog-905889553400399981.post-42632862002563847572017-05-05T18:32:59.731-07:002017-05-05T18:32:59.731-07:00When you find yourself dreading dry or dense foods...When you find yourself dreading dry or dense foods because you have difficulty swallowing them, take note! You might have eosinophilic esophagitis. This means your esophagus narrows so much that food gets stuck, resulting in impaction – which is a medical emergency. Have yourself checked for it – don’t just assume that you have food allergies or just need to chew your food more thoroughly! <br /><br /><a href="http://studyscavenger.com/ClinicID/74415/ORBIT" rel="nofollow">click here for more details</a>Anonymoushttps://www.blogger.com/profile/17591215348039108972noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-77707900205438844692014-05-09T11:22:50.129-07:002014-05-09T11:22:50.129-07:00Uughh! Poor Gavin! I hope there were no scars when...Uughh! Poor Gavin! I hope there were no scars when the doctor patched him up. Kudos for you for raising one brave boy! I hope he’s not doing some adventure out of curiosity these days. Stay safe, and good luck on raising the kids these year!<br /><br /><a href="http://ushealthworksstocktonw.blogspot.com/2014/04/west-stockton-urgent-care-cardiac.html" rel="nofollow">Clyde Kurt @ US Health Works</a><br />Anonymoushttps://www.blogger.com/profile/18175523919104631365noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-61119901008148133172014-03-01T13:28:49.067-07:002014-03-01T13:28:49.067-07:00it’s a great post. The info is good to know!
I loo...it’s a great post. The info is good to know!<br />I look forward to reading more. Its an informative topic. It help me very much to solve some problems. Its opportunity are so fantastic and working style so speedy. I think it may be help all of you. Thanks.<br /><br /><a href="http://www.srisriholistic.com/cardiology.html" rel="nofollow">Cardiology Hospitals</a><br />Anonymoushttps://www.blogger.com/profile/13741598008162034323noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-39730497123599588872013-07-09T22:07:30.623-07:002013-07-09T22:07:30.623-07:00one tough boy! He is getting big.one tough boy! He is getting big.Neldajayhttps://www.blogger.com/profile/08121661112531024593noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-88431745417669686512013-07-07T17:30:52.743-07:002013-07-07T17:30:52.743-07:00I just stumbled upon your blog. First I have to s...I just stumbled upon your blog. First I have to say thank you for taking the time to write down your thoughts. My son just turned 4 and won't eat. He will say eating hurts him. He was a premie, has asthma and hay fever, and had no problem until about 2 years old. He WILL NOT eat any breads or meats. He basically lives on apples. My "mom instinct" kicked in a while ago when I noticed he would flat out refuse food. Everyone around me thought I was insane. "He is just picky - kids are picky you know, even you were a picky eater". I might have been picky but I at least ate. It is very hard to watch/listen to your child say they are hungry constantly but not be able to/want to eat anything. We have been referred to feeding team upon feeding team. People think I am "LUCKY" because my child will only eat fruits and vegetables. It is not lucky to have a 4 year old that only eats one apple ALL DAY. It is scary and heart breaking. Thank you for allowing me to vent on your blog. I have been searching for support groups. Or just an ear to listen. I hope you have found some even ground (as I notice that this post was a while ago). ~*Lalelop*~https://www.blogger.com/profile/11617945671279355245noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-32280511096581989202013-01-22T14:32:56.704-07:002013-01-22T14:32:56.704-07:00I have come across your blog looking for some guid...I have come across your blog looking for some guidance- we are searching for a GI dr. in the phoenix area. WE believe she has EOE and are looking for a good doctor to take her to. Any suggestions would be truly appreciated. She has been referred to Dr. Montes at PCH but we are hoping to find someone whose child has EOE for a recommendation outside of a generic referral from her pediatrician. Thanks in advancePhil and Laurenhttps://www.blogger.com/profile/00915312626119468298noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-29397296471412716612012-02-14T14:41:22.375-07:002012-02-14T14:41:22.375-07:00Praying for a smooth recovery. My Asher was born 4...Praying for a smooth recovery. My Asher was born 4/2010. He has ToF, severe pulmonary atresia, absent pulmonary valve, and MAPCA's. We had his BIG surgery done at LPCH, with Dr.Reddy (originally scheduled with Dr. Hanley, but Ash needed it sooner) in Sept 2010. He had his pulmonary valve and conduit replaced again this last September at Primary Childrens in Utah. Though- after reading your last post- I wonder if we should have gone back to LPCH for follow up. They have amazing Dr's there- just make sure you force them to communicate with you (nurses too). They were terrible at it when I was there! Take time to eat in downtown Palo Alto- I really miss Pluto's. And try the cioppino at California Cafe across the street from the hospital!Carinnehttps://www.blogger.com/profile/11570410837265349979noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-44748829865808192702012-02-13T16:15:47.912-07:002012-02-13T16:15:47.912-07:00Hang in there Anneke! Thank you for the constant u...Hang in there Anneke! Thank you for the constant updates on your beautiful princess. You sure have your hands full, but somehow figure it all out and turn something negative into a positive! You are admired by so many of your friends! We will all continue to pray for little Grace and the rest of your family!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-29738527049079094182012-02-12T20:51:57.128-07:002012-02-12T20:51:57.128-07:00I know we don't know each other, but I'm a...I know we don't know each other, but I'm a fellow heart mom and my baby boy just had his second heart surgery at Stanford a few weeks ago. We actually live in the area and I wanted to let you know that I would love to bring dinner to your family, or do anything else to help your stay more comfortable. Please send me an email if you get a chance so we can connect. wigginton dot heather at gmail dot com I'll pray for that sweet baby girl of yours and hope that recovery goes well.The Wigginton Familyhttps://www.blogger.com/profile/12049347262671380271noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-81282797762631195472011-11-23T00:33:46.122-07:002011-11-23T00:33:46.122-07:00Gracie girl will come through this with flying col...Gracie girl will come through this with flying colors!! Your love for her is whats gets you guys and us all through the rough times!Cake Galhttps://www.blogger.com/profile/17934962643999025279noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-57471874739483372272011-11-22T23:10:39.117-07:002011-11-22T23:10:39.117-07:00Stanford is the best! Trust them and your instinc...Stanford is the best! Trust them and your instincts. Positive thoughts and Prayers for little Grace.cicinoreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-17437503594714655472011-09-05T00:17:36.057-07:002011-09-05T00:17:36.057-07:00Hello, my name is Lara, and I just wanted to let y...Hello, my name is Lara, and I just wanted to let you know that I recently found your blog. I hope you don't mind me reading it. My husband and I found out this past week that our 35 week unborn baby has TOF. I am trying to connect with other families as we begin this journey of dealing with a child with a CHD...Lara H.https://www.blogger.com/profile/11283531518055854450noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-11499107914009680182011-07-14T16:44:44.498-07:002011-07-14T16:44:44.498-07:00Hi
My name is Jenna and I came across your site. ...Hi<br />My name is Jenna and I came across your site. Grace and Gavin, are amazing, courageous, strong and determined fighters. They are brave warriors, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and I love it when people sign my guestbook. www.miraclechamp.webs.comSmilen Champhttps://www.blogger.com/profile/16312018180245012719noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-68337679170434854642011-05-26T20:54:31.059-07:002011-05-26T20:54:31.059-07:00and dont forget anteeee blair.. :)and dont forget anteeee blair.. :)blairnoreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-88649359180173067422011-05-11T08:19:46.745-07:002011-05-11T08:19:46.745-07:00My son has just been diagnosed with EOE. I am so g...My son has just been diagnosed with EOE. I am so grateful to have stumbled upon your blog. You mentioned that people with EOE sometimes have foot/ankle pain and ear infections etc. Our doctor has not addressed this and our son is in pain every single day! I am so grateful to perhaps at least have the beginnings of an explanation. THANK YOU and God blessAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-55892020780699734002011-03-12T23:05:47.931-07:002011-03-12T23:05:47.931-07:00As the mother of a child with Sensory Processing D...As the mother of a child with Sensory Processing Disorder, I know this all too well. It makes me so sad that so many of our kiddos get the reputation for being "spoiled" or "improperly disciplined" when they just don't process things as easily as the rest of us and just living a day in their world would silence even the loudest of critics. It's a difficult thing in and of itself, let alone trying to battle the misconceptions from the public eye about it. So, lady in the bathroom who felt the need to hush my child's sobs at the sound of the hand dryer, and tell your children "see how not to act".... as much as I'd like to throw a punch at you, I will just make a promise to myself to never be so ignorant... for you never know the battles a family is facing or the true reasons for any individual child's behavior or parent's choices. We as mothers should be called to support, not judge.Melissahttps://www.blogger.com/profile/15894514273411083862noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-22834407343192519372011-03-10T15:58:26.170-07:002011-03-10T15:58:26.170-07:00I just found your blog and I know you posted this ...I just found your blog and I know you posted this a long time ago, but suggestions for bouncing toddlers in a crib is a bed tent. They can't bounce or climb out of a crib with the tents the sell to go in cribs. It is a pain to change the sheets, but an option if you are not ready to switch to a toddler bed.<br /><br />My main reason for writing though was to say hello. It sounds like your daughter and my daughter have similar heart conditions and not far apart in age. I remember how excited I was to get my daughter off of viagra too. I hope you all are doing well.Melhttps://www.blogger.com/profile/11148983594692927783noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-48666665101652991202011-02-09T00:08:08.691-07:002011-02-09T00:08:08.691-07:00Love, love, love this post.Love, love, love this post.Tiffanyhttps://www.blogger.com/profile/08521347376455628901noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-54017166554133430422011-01-12T21:15:14.067-07:002011-01-12T21:15:14.067-07:00I just found this blog and just wanted to thank yo...I just found this blog and just wanted to thank you for sharing. My son was diagnosed with EE almost a year ago at the age of 2 1/2. I too, just began a blog and have found it to be therapeutic. Feel free to visit (http://ahardjob.blogspot.com/) and if you would like, you can add a link on here and I will do the same :)<br />KimKimmyhttps://www.blogger.com/profile/08999326695329740719noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-34842653422057691802010-12-31T13:52:28.758-07:002010-12-31T13:52:28.758-07:00Have just spent a little time reading about your v...Have just spent a little time reading about your very special children! You are an amazing Mommy!! I must say I am jealous of your Respite care! Utah's respite care is almost impossible to qualify for :( and the waitling list is about 3 years long!!! Sometime we should chat or e-mail about your Ethan, because his delays (and ear infections etc..)sound very very similar to my 5 year old Ammon. Sorry to say, he's never been officialy diagnosed with any kind of "title" but he continues to progress and is doing great. So glad to hear your Grace is doing well :)<br /><br />Happy New Year!!<br /><br />Love, <br />Miracle Mason's Mommy<br />sumstrick@gmail.comSummerhttps://www.blogger.com/profile/10545773514266397212noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-26808536522795852392010-12-28T13:16:22.406-07:002010-12-28T13:16:22.406-07:00I would love for you to add me to your heart buddd...I would love for you to add me to your heart budddies :) Thank you!Ashley Drury-Guglielmettihttps://www.blogger.com/profile/11399834488229665607noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-15322429199294420802010-10-21T20:31:10.777-07:002010-10-21T20:31:10.777-07:00I've seen this poem on Facebook, and I absolut...I've seen this poem on Facebook, and I absolutely love it!<br /><br />I'm glad you found me, and I hope I can help you in any way. It's very daunting at first, but once you figure out what Gavin can eat, it gets easier. What kind of diet do they have him doing now? Are you on formula only? There is a great network of people on Facebook, too. I can hook you up if you want, they are seriously amazing people. <br /><br />If you need anything or just want to talk, my email is meganwhite1@msn.com. I'm happy to hear from you!Meghttps://www.blogger.com/profile/12739415043391599398noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-83392979059092783692010-10-17T16:52:57.688-07:002010-10-17T16:52:57.688-07:00I love that poem! Your new layout looks great too...I love that poem! Your new layout looks great too.The Simmons Familyhttps://www.blogger.com/profile/14206401418544523378noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-27782359294562193242010-10-15T19:21:35.360-07:002010-10-15T19:21:35.360-07:00what a nice Halloween design and a lovely family p...what a nice Halloween design and a lovely family photo. Advance happy Halloween to you all!Neldajayhttps://www.blogger.com/profile/08121661112531024593noreply@blogger.comtag:blogger.com,1999:blog-905889553400399981.post-67458599791184276652010-10-14T18:13:41.065-07:002010-10-14T18:13:41.065-07:00OH MY, I am so sorry! You deserve a pity party! ...OH MY, I am so sorry! You deserve a pity party! It is not fair that your sweet little guy has this. Hopefully treatment will help him out now that you know what he has. Praying for relief!ShannonLeidekerhttps://www.blogger.com/profile/04069738759814860753noreply@blogger.com